Self-Advocates and Research: Transcript
This is where you will find the transcript for our presentation at BPDD 2023 Self-Determination Conference, "Self-Advocates and Research: Working on Research Teams Studying COVID-19"
This is where you will find the transcript for our presentation at BPDD 2023 Self-Determination Conference, "Self-Advocates and Research: Working on Research Teams Studying COVID-19"
Brittany St. John has been awarded the Wisconsin Distinguished Graduate Fellowship from the Waisman Center for the 2021-2022 academic year.
The Wisconsin Distinguished Graduate Fellowships program was created in 1997 through the foresight and generosity of three major partners: the University of Wisconsin Foundation, the Wisconsin Alumni Research Foundation, and alumni donors. The primary objective of the Wisconsin Distinguished Graduate Fellowships program is to ensure that the University has the resources to attract the nation’s most talented students and to enable them to pursue their studies at UW-Madison.
Brittany will receive this award formally as part of the Friends of the Waisman Center Annual Meeting beginning at 3:30 p.m. on Tuesday, August 10th in a virtual ceremony.
Congratulations, Brittany!
Hello! Happy March! Welcome to the Health Research Advocacy and Engagement Blog! On this blog, we will post monthly updates highlighting exciting news, and research opportunities. We encourage you to check back at the beginning of each month to hear what’s going on in the Ausderau Research Lab! You can also follow the Ausderau Lab on Facebook, where we will post a link to each new blog post. As you read each blog post, maybe you find that you agree with the author, or that you’d like to share another point of view. After each of the new blog posts, you will be able to make a comment or share your ideas if you want. To leave a comment, scroll down to the bottom of this page. Under the heading “Leave a Reply,” write your ideas in the comments box. You’ll also need to give us your name and email address in order to post the comment. When you’re done, click the blue “Post Comment” button! As soon as your comment is approved, it will be posted underneath the blog post for others to read.
For our first post, we’d like to say a big THANK YOU to everyone who helped us with the Health Research Engagement Toolkit. This toolkit is a how-to guide for individuals with intellectual and developmental disabilities and their caregivers to understand and get involved in research. We had over 100 people from around the country help us create this toolkit! We had the opportunity to work with community organizations, such as Board for People with Developmental Disabilities and Gigi’s Playhouse, as well as 54 development team members from Special Olympics Wisconsin, Minnesota, Nebraska and Florida! We also worked with 45 working group stakeholder members from Wisconsin, New York, South Carolina, Rhode Island and Arizona and 20 Advisory Board members. We are so thankful for the huge team effort. Thank you to EVERYONE who helped us with this project!!!
Over the next few months, we will be highlighting the many accomplishments of our development team members. Coming up, we’ll share the story of one of our development team member’s experience working on our research team to create the READI curriculum. We’ll also highlight how another development team member has taken health advocacy to the next level by talking to lawmakers about the need for more research into how education about obesity prevention is delivered to individuals with intellectual disabilities. Our development team members have been doing a LOT of great work in their communities, and we look forward to sharing these experiences with you!
The individuals in these photos participated in the READI (Research Engagement and Advocacy for Diverse Individuals) pilot modules. They gave us very important and incredibly helpful feedback that helped us make the READI curriculum even better. If you participated in a READI pilot or another health research event and would like to be featured in a blog post, please contact the Ausderau Lab at ausderaulab@education.wisc.edu.
Finally, we have a question for you!
How did you help with the Health Research Engagement Toolkit? Did you participate in our READI pilot? Did you help develop some of the materials? Did you create a video for the website?
Please share by commenting on this post! We look forward to hear how you have helped, and you can see how others have helped!
Happy Researching!
We have exciting news! Congratulations to Kathryn Bach for passing her NBCOT! Kathryn has been in our research lab while getting her Master’s in Occupational Therapy at UW-Madison, and she has recently graduated.What’s next for Kathryn? She will be moving to Boulder/Denver where she hopes to start an OT job in an inpatient rehabilitation setting. During her free time, she plans to spend a lot of time playing outside and reconnecting with college friends!
Congratulations to Megan Gray, Natalie Dulaney, Alison Mushett, Steve Woodard, and the rest of the team for their presentation today at the 2020 Virtual Self-Determination Conference put on by the Board for People with Developmental Disabilities (BPDD)! The presentation focused on empowering individuals with intellectual and developmental disabilities (IDD) with the skills needed to be engaged in research.
For more information about the conference, check out their website. Thank you, team!
Megan Gray, Natalie Dulaney, Alison Mushett, and Steve Woodard will be presenting at the 2020 Virtual Self-Determination Conference put on by the Board for People with Developmental Disabilities (BPDD) next week!
The presentation will be geared towards empowering individuals with intellectual and developmental disabilities (IDD) with the skills needed to get more engaged in research. Specifically, the presentation will focus on what health research is, why individuals with IDD belong on a research team, and how participants can use their own personal health stories to advocate for themselves and for other people! Join them as they present virtually on October 28th from 10:45 AM to 11:45 AM. Find more information on BPDD’s website!