Who We Are:
We are the Health Research Engagement Team from the University of Wisconsin-Madison and the Waisman Center. Our team includes researchers, health care providers, Special Olympic Wisconsin athletes and members, caregivers, and community stakeholders across the nation as we collaborate with Special Olympic Athletes from New York, South Carolina, Arizona, and Rhode Island. We are a big team that all believe the importance of accessibility and inclusion for individuals with diverse abilities in research. Our project is funded through the Patient-Centered Outcomes Research Institute (PCORI). We thank our dedicated national network of stakeholders for their extended time, energy, and commitment to this project and to a vision of research inclusion.
What We Do:
We support the engagement of people with intellectual and developmental disabilities (IDD) in the development of research. Our Health Research Engagement Toolkit is an opportunity for individuals with IDD to learn the steps to be involved in research and the tools that would allow them to advocate for their needs or activities that are important to them. Through their research engagement, we hope to identify meaningful research priorities and address health disparities for people with IDD to develop inclusive, engaging, and accessible research. Our mission is to increase participation research and improve health outcomes.
IDD Research Toolkit
Read more about our project:
Research Engagement with People with Intellectual and Developmental Disabilities
Learn more about our new project:
Research Engagement with People with Intellectual Disabilities: Bridging the Health Research Gap
Ready to explore the Health Research Engagement Toolkit?
Click on the image below to start!
Who do we collaborate with?
This Health Research Engagement work was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EA #10029). We thank our dedicated national network of stakeholders for their extended time, energy, and commitment to this project and to a vision of research inclusion.