
IDD Research Toolkit
Develop Inclusive and Accessible Research
Tips for Inclusive and Accessible Research is a guide for researchers to promote inclusive research practices for individuals with intellectual disabilities. Learn ways to use inclusive and accessible practices in your research studies!
Accessible Consent Forms for Research Participation
Accessible Consent Forms for Research Participation is a guide for researchers to learn about consent forms and how to make them accessible for people with IDD. Clear communication and understanding the rights for people in a research study will provide a positive, safe space for participants.
Download: Accessible Consent Form for Research Participation
Tips for Recruitment in Research
Tips for Recruitment in Research is a guide for researchers to learn how they can find people with IDD that want to be part of their research study. Researchers can learn where to look and what information to provide. It also talks about how to build relationships and understand the barriers for people with IDD.
Download: Tips For Recruiting People With IDD
Support Needed for Research Participation
This is a guide for how researchers can provide support for people with intellectual and developmental disabilities. Learn the importance of accessible documents, respectful communication, different modes of communication, flexibility, and more!
Download: Support Needed For Accessible Research Participation
What Doctors and Health Systems Should Know
This guide is for doctors and health systems to learn what they should know about medical care for individuals with intellectual disabilities. We had 52 individuals with intellectual disabilities write health stories for health care and research advocacy, and they talked about using accessible language, recognizing multiple identities, keeping telehealth services, expanding insurance coverage, and more!
Advocacy Research Tools Citations
- Develop Inclusive and Accessible Research
- Accessible Consent Forms for Research Participation
- Tips for Recruitment in Research
- Support Needed for Research Participation
- What Doctors and Health Systems Should Know
Ausderau, K. K. & Health Research Engagement Development Team. (n.d.). Develop Inclusive And Accessible Research Infographic. A product of the ‘Research Engagement with People with Intellectual and Developmental Disabilities’ project (PCORI Eugene Washington Engagement Award #10029)
Ausderau, K. K. & Health Research Engagement Development Team. (n.d.). Accessible Consent Forms For Research Participation Infographic. A product of the ‘Research Engagement with People with Intellectual and Developmental Disabilities’ project (PCORI Eugene Washington Engagement Award #10029)
Ausderau, K. K. & Health Research Engagement Development Team. (n.d.). Tips For Recruitment In Research Infographic. A product of the ‘Research Engagement with People with Intellectual and Developmental Disabilities’ project (PCORI Eugene Washington Engagement Award #10029)
Ausderau, K. K. & Health Research Engagement Development Team. (n.d.). Support Needed For Research Participation Infographic. A product of the ‘Research Engagement with People with Intellectual and Developmental Disabilities’ project (PCORI Eugene Washington Engagement Award #10029)
Ausderau, K. K. & Health Research Engagement Development Team. (n.d.). What Doctors And Health Systems Should Know Infographic. A product of the ‘Research Engagement with People with Intellectual and Developmental Disabilities’ project (PCORI Eugene Washington Engagement Award #10029)